Saturday, June 13, 2009

Retiring this blog

Thanks so much for your prayers and support.  We appreciate everyone's concern for our family so very much.   John and I have decided to close this blog since the hospitalizations are over and we have begun to adjust to our new normal. But, I have a feeling that our "normal" will be an ever-evolving thing given Ryan's condition.  Our prayer for Ryan is that he would be able to get off the TPN--while it's keeping him alive now, it will slowly kill his liver over time--his survival depends on his ability to get off the TPN and that is the bottom line.  we will be praying for this always.

Please join us at our previously-scheduled family blog:
where we'd been posting pictures and stories for our friends and family who are across the globe.  We plan to continue there without the sole focus on the babies.

thanks again.  love to you.
The O'Neills.

Tuesday, June 2, 2009

holy crap

ok, the pictures below tell a beautiful story, so I won't ruin it by telling you the utter insanity that was our day and that will be our lives from here on out.  Ryan's care needs are overwhelming--not to mention that he's changed from the happiest baby in the NICU to the crabbiest baby ever.  Please understand, however, that we are THRILLED beyond words to have him home.  it's just scary.

OK, enough reality...let us go back to the loveliness that these picture attempt to convey.

first time off monitors

ready to go!

holy crap we have 2 the same time!

last few minutes in the NICU

home at last

our IV room at home