2PM: They are one month old today. Here are the updates.
Nora: still breathing independently. Head ultrasound today was unremarkable--no PVL. we are so so glad. belly less full, which is good, but abdominal xray shows an "area concerning for NEC." (NEC = necrotizing enterocolitis, what Ryan has)--this is a new development and exactly what I've been fearing the most. They are continuing to hold her feeds and give her broad-spectrum antibiotics. Basically, they're treating her like she has NEC.
Ryan: is still fighting. he's starting to move his legs and toes some--I pray he isn't feeling pain associated with all of this (I think that's my biggest prayer right now, honestly, I don't want him hurting). Head ultrasound today showed no bleed and no PVL. He is still on lots of support to keep his blood pressure up. He's clotted off a few of the IV lines they had and they are having a hard time getting the IV access they need to get all his meds in him and get all his labs that he needs drawn. he got a few transfusions yesterday and overnight. They said he'd get worse before he gets better due to all the stress and injury from the infection and the surgery--he's definately worse, but the surgeons said he's not worse than they'd expect him to be.
Please pray as you are lead. thanks.