PM: first, we are weaning our blogging down to once per day--just a heads up. this is the last post for today. no change in Ryan--he's doing pretty well. when he is awake he is taking additional breaths beyond what the ventilator is doing so that is good. Nora deteriorated pretty quickly today and has been put back on the ventilator. she has aspiration pneumonia, it seems. she hasn't opened her eyes or responded to me at all today, which is not like her at all. she is getting a transfusion as i type this, which should help her out a bit. here's hoping she perks up quickly. if we weren't living this nightmare, i would think we were making this up.
AM: when we came in this morning, Nora looked awful. she was having lots of episodes of apnea (not breathing) and was very pale and lethargic. They had to put her back on the CPAP machine to help her breathe and she is not better. Now, she's even more floppy and not responding to much of anything--if she doesn't improve, she will be back on the ventilator. They are doing a workup on her to find out if she's infected--another spinal tap, another set of blood cultures, another urine culture. please pray for her.
Ryan is still looking better-his weight is down and they have been able to go down on his ventilator settings even more.