Ryan looks good too. He's back on the CPAP, but doing better on it than he was on the cannula yesterday. He started breastmilk again--same as before 1 mL per hour. I pray he tolerates it this time. He was doing well when we left--no leftover milk in his belly and he was pooping so much that he now has a itty bitty baby sized ostomy bag on his belly. we should be able to hold him and/or kangaroo with him tomorrow. He's 4 lbs 1 ounce right now.
Ryan may be dealing with something called short bowel syndrome--that's the expectation from the surgeons since he lost half of his intestines due to the infection. They expect he will need partial IV nutrition to maintain his nutritional needs. I pray he does much much better than expected and surprises everyone. Basically, with the amount of small intestine that he has remaining, it's difficult to say how he'll do--some kids do great and their intestines somehow adapt--others don't do as well. With his extent of loss, he will be slow to transition from the IV nutrition to oral over months and months--but the key is getting him on as much nutrition via his gut as possible (either eating by mouth or via a tube into his stomach) b/c longterm IV nutrition is not good for the liver--and the sooner they start putting food into the gut, the more likely the intestines are to adapt. John and I have been reading up on this quite a bit--some of it is hard to read and some of it gives us hope.